Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Featured

Were you given resources?

Upon receiving your diagnosis did anyone give you resources on your diagnosis and what to expect?...

Visiting an NMO clinic

Has anyone visited an NMO clinic? Have you been seen by a specialist whose focus is entirely on NMO? What was that experience like for you? If you haven't, would...

NMO Chronic Pain

How are you coping with NMO pain? Any tricks you may want to share to alleviate the symptoms?...

PLEX Help/Hurt/No change...

Have you had PLEX? Did you feel that it helped you, hurt you, or was there no change? How many rounds have you received, and what is your current prognosis?...

Disability

Hello everyone! Are any of you receiving disability? Was it a challenge? I'm in the process now but have been denied a few times. I have a lawyer now but...

Symptoms in winter

Hey guys! Is anyone flaring because of the weather? what do you do to prevent this?...

Featured

Holidays with NMO

Hey friends, How is everyone getting ready for the holidays? Are you hosting and how do you prep to preserve energy? Are there any foods you avoid? Do the holidays...

Featured

Constant headaches that don’t go away

I got diagnosed early this year I’ve now started getting headaches all over and sometimes shooting pains on side of my head. Has anyone else experienced this or anything similar....

High cholesterol

I had my blood test done last week and have been told my cholesterol is high could this be because of being on steroids since last year. I’m a sensible...

Self Love

It’s no secret that NMO can change how your body is. It can definitely mess with mental health. It’s important to have self love even through living with a hateful...

Categories

Select a category to find topics that interest you.