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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

riximyo

Has anybody used this drug and what have the side effects been like?...

Am I okay or not ???

Ever since the onset of heavy winters here especially in December, I have been experiencing bad stiffness, joint pain, high levels of anxiety, and a burning sensation in my spinal...

Symptoms of NMOSD

How does this disease affect the resp system. They say in comorbidities this can cause death....

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Share a piece of advice or a quote that's helped you 💚

We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...

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Meet and Greet! When were you diagnosed!? 💚

Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you!...

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Were you given resources?

Upon receiving your diagnosis did anyone give you resources on your diagnosis and what to expect?...

Visiting an NMO clinic

Has anyone visited an NMO clinic? Have you been seen by a specialist whose focus is entirely on NMO? What was that experience like for you? If you haven't, would...

NMO Chronic Pain

How are you coping with NMO pain? Any tricks you may want to share to alleviate the symptoms?...

PLEX Help/Hurt/No change...

Have you had PLEX? Did you feel that it helped you, hurt you, or was there no change? How many rounds have you received, and what is your current prognosis?...

Disability

Hello everyone! Are any of you receiving disability? Was it a challenge? I'm in the process now but have been denied a few times. I have a lawyer now but...

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