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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

How do you stay positive during difficult times?

Life can be full of challenges. What are some things that you do to stay positive when times are tough? Share some tips in the comments ❤️...

Antibody negative

Hi guys. Firstly I'd just like to say this forum is brilliant. I've enjoyed reading lots of your posts. Very informative :) I have a particular query for anyone who...

Traveling with NMO

Does anyone have any tips for traveling with NMO? What do you pack? What necessities do you make sure that you have? Are you able to sit in a car...

Treatments

Hey everyone I am newly diagnosed and just don’t know what to expect . I had a few episodes of optic neuritis . But fear the worst is yet to...

Featured

Looking back to Look forward

What's one piece of advice you would give your self pre-diagnosis? What's on piece of advice you would give your future self?...

Neuro͎ myelitis optical spectrum

I just got diagnosed with it. I’m scared...

What to expect

I got a newly diagnosed this week. And I don’t know what to expect like can you live a normal life ? What are some challenges and what does everyone...

Giving up?

What’s one time you wanted to give up on your self dealing with NMOSD? How did you get through? For me it was after I got my 4th rare disease...

What do you carry around in your bag?

What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices? Tell us what you carry in your bag....

Newly diagnosed

Hi I’m newly diagnosed early this year so much has changed just got a letter for a appointment for self catheterisation I’ve gone from being active to being not so...

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