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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Holidays with NMO

Hey friends, How is everyone getting ready for the holidays? Are you hosting and how do you prep to preserve energy? Are there any foods you avoid? Do the holidays...

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Constant headaches that don’t go away

I got diagnosed early this year I’ve now started getting headaches all over and sometimes shooting pains on side of my head. Has anyone else experienced this or anything similar....

High cholesterol

I had my blood test done last week and have been told my cholesterol is high could this be because of being on steroids since last year. I’m a sensible...

Self Love

It’s no secret that NMO can change how your body is. It can definitely mess with mental health. It’s important to have self love even through living with a hateful...

How do you stay positive during difficult times?

Life can be full of challenges. What are some things that you do to stay positive when times are tough? Share some tips in the comments ❤️...

Antibody negative

Hi guys. Firstly I'd just like to say this forum is brilliant. I've enjoyed reading lots of your posts. Very informative :) I have a particular query for anyone who...

Traveling with NMO

Does anyone have any tips for traveling with NMO? What do you pack? What necessities do you make sure that you have? Are you able to sit in a car...

Treatments

Hey everyone I am newly diagnosed and just don’t know what to expect . I had a few episodes of optic neuritis . But fear the worst is yet to...

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Looking back to Look forward

What's one piece of advice you would give your self pre-diagnosis? What's on piece of advice you would give your future self?...

Neuro͎ myelitis optical spectrum

I just got diagnosed with it. I’m scared...

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