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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a very moving documentary and It made me relate...

Vacationing with NMOSD?

NMOSD can create some obstacles in our day-to-day lives; everyone needs a vacation. How does having NMOSD affect your ability to take a vacation? What do you do to make...

How has NMOSD changed your life?

NMOSD can have unpredictable impacts on how we live our lives. What are some ways that NMOSD has impacted your life? What has changed for you?...

Ableism and discrimination

Ableism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're comfortable, share some of your experiences in this...

Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this damn care attitude. I take risk often and...

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May is Mental health awareness month

As a patient with nmo I've had my fair share of mental breakdown but my family's support always helps me bounce back up. I always comfort myself with an over...

Whats the best way?

Is it to talk to my friend or my partner or mom/dad? Or just keep it to myself? I am not sure talking with them will help because they won’t...

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March is NMO Awareness Month!

March is NMO awareness month! The neuromyelitis-optica.net team is celebrating with the theme, "A Seat at the Table". A seat at the table represents an opportunity to be heard and...

Symptoms of NMOSD

How does this disease affect the resp system. They say in comorbidities this can cause death....

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