Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey?...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

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Cold Sensitivity

Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each...

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...

Feeling Helpless—Seeking Key Contacts & Hope for NMO

Hello, This is one of the more difficult posts I’ve ever written. My mother was diagnosed with NMO 15 years ago, back...

Medical Marijuana

Has anyone tried Medical Marijuana for their pain. I am scared to ask my Dr. for it....

Ableism and discrimination

Ableism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been...

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