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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

What do you carry around in your bag?

What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices?...

What keeps you comfortable with NMOSD?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

Relationships

If you are single has any of you been afraid to start a relationship due to all of the difficulties of NMO...

Nmosd & pregnancy

Have anyone been pregnant or is currently pregnant while battling nmosd? What is it like and how are you managing? Is it...

NMOSD Clinics

I wasn't aware that there are clinics out there for NMOSD:( Can you tell me where they are located???? Please and Thank...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

I Don’t Feel Validated Unless I’m Working!!

I am a nurse and a chef, but right now I don’t know what I’ll be able to do physically for the...

Symptoms

I am working full time, and over the past month I am having stiffness in my lower back I get weird tingling...

IVIG to prevent relapse

Is anyone being treated with IVIG and steroids to prevent relapse?...

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