NMO Diet AdjustmentHave you changed your diet due to your NMO diagnosis? How has it helped you?...Reactions 0 reactions Comments6 replies
StressDoes Stress and /or Anxiety affect your symptoms with NMOSD?...Reactions 0 reactions Comments16 repliesCoping
Having a severe first attack I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...Reactions 0 reactions Comments1 repliesDiagnosisAwareness
Uplizna Side effects and reactionsI have been diagnosed with NMOSD few weeks ago and will start Uplizna treatment soon. I was wondering if someone is on it currently that could provide me any insight...Reactions 0 reactions Comments1 repliesTreatment & Medication
What helps spasms for you?I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly and I only take to Tizanadine. What helps...Reactions 0 reactions Comments11 repliesPain
FeaturedNMO & LupusHi, my daughter was diagnosed with NMO in 2012 after a false diagnosis of MS at age 16. Today she is having blood test to see if she now also...Reactions 0 reactions Comments5 replies
bloated tummy from steroidsHello Guys it’s been a while am off from steroids but my tummy still bloated. Did anyone encounter same problem? how long will this get deflated? Thank you...Reactions 0 reactions Comments4 replies
FeaturedThe Eyeball Headache Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and painful. The kind of pain that no amount...Reactions 0 reactions Comments10 repliesPain
My husbandMy husband will be 70 this month. He has struggled with “neuropathic itching“ for years. He's gone to Dermatologists, neurologists, and pain management specialists. He's tried Gabapentin, Cymbalta, Valium, Allergy...Reactions 0 reactions Comments1 replies