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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Solaris

I will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am receiving now is Solaris I cannot tell any...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are there other ways besides wearing a brief?...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly and I only take to Tizanadine. What helps...

Have you gone to physical therapy for NMOSD?

People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...

What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...

Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

Has anyone taken the survey?

Just wondering if online study/survey is on the level?...

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