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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

What is Neuromyelitis Optica and How is it Managed?

Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord. This condition leads to severe inflammation and demyelination...

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMO diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

Working with Pain

Hi friends! I’ve been having a hard time with working a regular job due to the pain I get. Does anyone else deal with thiS?...

Back pain

Has anyone experience lower back pain or discomfort?. I was recently diagnosed with NMO, I received my first rituximab treatment and the back pain started after that. Anyone else? Is...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Acquiring assistance

i currently live in Florida As a caregiver with a love one with NMO where do we go to get the proper assistance. on dealing with this , where are...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a very moving documentary and It made me relate...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

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