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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad...

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Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when...

Newly diagnosed: How probable are subsequent attacks

Hey everyone! My awesome wife, who is 32 years old, recently received two significant pieces of news: she is pregnant with our...

Tips for showering

Does anyone have tips for making showering less difficult and more enjoyable?...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At...

Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes...

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