Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Tips for showering

Does anyone have tips for making showering less difficult and more enjoyable?...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third party functional med lab (Vibrant). It detected moderate...

Psoriasis

Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant for it. I am already on Ultomiris for...

Solaris

I will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am receiving now is Solaris I cannot tell any...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are there other ways besides wearing a brief?...

Categories

Select a category to find topics that interest you.