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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third...

Psoriasis

Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant...

Solaris

I will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

Have you gone to physical therapy for NMOSD?

People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and...

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