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Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Working with Pain

Hi friends! I’ve been having a hard time with working a regular job due to the pain I get. Does anyone else deal with thiS?...

Back pain

Has anyone experience lower back pain or discomfort?. I was recently diagnosed with NMO, I received my first rituximab treatment and the back pain started after that. Anyone else? Is...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Acquiring assistance

i currently live in Florida As a caregiver with a love one with NMO where do we go to get the proper assistance. on dealing with this , where are...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a very moving documentary and It made me relate...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries?...

Uhthoff coping

Does anyone have/had Uhthoff syndrome and if so ? What helps you deal with...

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