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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

NMO SUPPORT GROUP for PATIENTS & CAREGIVERS

Hi everyone!! I’m happy to be back after a five week, what seems like forever attack in my left eye. I’m feeling so much better and so grateful. Starting tonight...

Have you experienced side effects from NMOSD treatment?

What have your treatments been? What were the side effects? How did you manage the side effects? Share here:...

Rituximab

Is anyone on Rituximab? If so, can you please let me know your experience with it and how it affects you? Thank you. Any info will help....

Managing weight

I stopped eating carbs and sugars. I have lost a lot of weight. How do you manage weight? Can I have carbs once in a while?...

Can Neuromyelitis Optica Occur in Children?

Yes, Neuromyelitis Optica (NMO) can occur in children, though it is relatively rare. Pediatric NMO often presents with similar symptoms to those seen in adults, including sudden vision loss, eye...

What is Neuromyelitis Optica and How is it Managed?

Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord. This condition leads to severe inflammation and demyelination...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMOSD diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

Working with Pain

Hi friends! I’ve been having a hard time with working a regular job due to the pain I get. Does anyone else deal with thiS?...

Back pain

Has anyone experience lower back pain or discomfort?. I was recently diagnosed with NMO, I received my first rituximab treatment and the back pain started after that. Anyone else? Is...

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