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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries?...

Uhthoff coping

Does anyone have/had Uhthoff syndrome and if so ? What helps you deal with...

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PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Advice for someone who is newly diagnosed with NMO

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...

Mental Health

Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...

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What was your first symptom?

What was your first symptom of NMO?...

How long will the arm seizures last?

I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that makes a little difficult and moving a little...

Difficulty with care

Frustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...

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